Yesterday just sucked. It was emotional, disappointing, and stressful. Sorry, Kristina, the sun didn't help my mood.
G ended up having an ok day. She, according to my mother, wasn't fussy or cranky after I dropped her off in the morning. She played nicely all day and ate well, took a good nap. All good things. She was in a good mood when I finally picked her up at 5:30pm and made us laugh and smile last night. But my heart ached for her all day.
And meanwhile, on the other side of my heart, John had a really rough day. He had a doctor's appointment in the late afternoon. I accompanied him. We waited roughly an hour before anything happened. The long and short of the appointment is this: it didn't work.
See, his GI doctor has determined that he can't find any gastrointestinal issue with John. He says that he has done every test and everything checks out. I have a very hard time believing or accepting that. But, anyway, his new big idea was that there must be some nerve dysfunction in John's abdominal wall that is basically causing his nerves to go haywire and causing the pain. So, he proposed to inject a numbing agent, much like you get at the dentist, into John's chest to see if he could numb the nerves and stop the pain. If it worked, this numbing agent would make him pain free for 4 glorious hours. After that, once they knew it would work, John could get a long acting shot that would work for 3 months. 3 Months! Of no pain! Of a normal life! It's like porn to our ears! Yeah, well, the shots, all eight of them, didn't work. His chest was numb. But that didn't stop his pain.
I think I bought into this concept more heavily than John did. He never seemed all that excited about it. I guess he has heard Dr. Marhaba promise a cure to his pain too many times now to believe it. I was so hoping that this was it! This was gonna work! Life would get back to something resembling normal and John would be free of this, and la de da, isn't spring just around the freakin' corner, too? I am so frustrated and disappointed. I have absolutely no idea what to do next. I think Dr. Marhaba is out of ideas. That may be a good thing, since everything he has done has just caused more problems (he's the genius that triggered John's pancreatitis in June.) But, I don't even know where to turn now. We have exhausted all the local resources. John has contacted his aunt who is a nurse in Brooklyn. She is working to locate a doctor down there who might help. We'll see.
I guess we'll just have to hang in there. Going permanently back to bed doesn't seem to be an option.
2 comments:
oy! i am so sorry nothing is working to make john feel better. and i know it is tough on all of you. you are a very strong woman, but if you ever need to just vent please call and start talking. we are here for you whenever you need it. love you lots! :)
dude shots to the tummy. oh my gosh. :P
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